News from the frontline

Happy New Year!

First of all, a very Happy New Year to you all.  Let’s hope that 2017 isn’t quite as turbulent as 2016 and that we all survive to the end!  We had some good times and some bad in 2016, like most people, but most excitingly we gained registration as a charity with the Charity Commission of England & Wales, which we hope will allow us to go on building those strong relationships with other charities, organisations and individuals who support all of us with vitiligo. 

We had officially designated January as the year’s suckiest month, but then lots of things started happening!  We’d like to share them with you, because they really require your participation and we hope that you will be encouraged by how much work is going on out there to support those of us with a visible difference.  Also we hope to meet some of you in March at the SkinMatters conference detailed below.

Have a great January, only 26 more days until February, or less if you’re reading this later in the month, how great is that!

1. Changing Faces

First of all, this amazing charity has provided support to everyone with a visible difference for twenty five years this year.  Happy Birthday to them!  They are in the course of gathering evidence about how your skin disease or condition impacts on how you live your life, via a very important survey.  Please would you help them by completing it?  It’s a very important gathering of evidence. to allow them to lobby on our behalf to make changes to how people with a visible difference get treated in the workplace, in the healthcare setting and in daily life.

The link can be found here and the closing date is 28 February:

 2.The University of Sheffield

The University of Sheffield has more friends of vitiligo, in particular in its psychology department, where we’ve been given particular support by Dr Andrew Thompson both in the past and present.  They have a study they’re doing in online self-help and would like your participation.   Here’s their advert for the study:

We would like to find out whether a self-help intervention is effective for adults with a visible skin difference. The self-help intervention aims to help people build their confidence in social situations.

This study is being conducted by researchers from the Department of Psychology at the University of Sheffield. If your confidence in social situations is affected by your visible skin difference and you are aged 18 or over and interested in taking part, please click on the link below. This will take you to the study website, where you can read more information.

The University of Sheffield- study website

If eligible, you can choose to take part, and will be asked to complete a set of questionnaires. These will be repeated once during the course of the study, to see whether the self-help is effective. You will receive the self-help intervention as a PDF document either straight away or after a waiting period. If you know someone else who might be interested in taking part, please feel free to forward this link.

3. SkinMatters

This organisation is planning a fantastic conference taking place in London on 25 March, and using as speakers some people we’ve worked with in the past, including Professor Chris Bridgett, Kerry Montgomery, Barbara Page and Dr Alia Ahmed.  It’s an all-day event, with excellent speakers, and including lunch & refreshments costs £32.  We are very excited to be involved in the patient support element of the day.  Please come along and learn more about managing your skin.

The link for booking can be found here:

Skin Matters