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Vitiligo Support UK was set up by Emma Rush.
Emma was previously Chair of Trustees at the Vitiligo Society and left to start up her own support group in July 2016.
She has extensive vitiligo, in particular on her face and hands.
The objects of the charity are:
To provide up-to-date information on the condition of vitiligo, research and ancillary drugs and trials relevant to its cure and treatment
To maintain an active presence on social media sharing relevant information across a wide audience
To explore new ways of improving the experience of patients with vitiligo when interacting with the medical profession
To provide advice and information on how to access psychological support for the anxiety and depression caused by the condition
To organise ‘meet-ups’ allowing people to share experiences
To provide support for families and young people with the condition
Emma is the patient representative on the UK TREND steering committee, for translational research in dermatology;
She is the patient representative for the clinical trial for the School of Pharmacy and Pharmaceutical Sciences at Cardiff University and
Lay Member on the Working Group for Phototherapy Standards.
We are also on Twitter: @VitiligoUK